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E.J.

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  • Westward, Ho!
    WE SET out from New Jersey on Friday. Since then a number of colorful ways to describe that state have sprung to mind, none of them especially complimentary. In the interest of maintaining an open mind, if anyone can think of any of New Jersey's redeeming qualities — other than that one outstanding pizza place in Jersey City, the name of which I've forgotten — please get in touch and I'll list legitimate ones below:

    A Comprehensive List of New Jersey's Redeeming Qualities:
    • That one outstanding pizza place in Jersey City


    Then Connecticut via New York State. A slight detour from our usual route to the Granite State, because trucks, even rental ones like the one we were driving, are forbidden past exit 105 on the Garden State Parkway: over the noisy, congested George Washington Bridge, where we were slapped with a $32 toll for passage. In the end it cost us $100 in similar tolls and gas to get out of New Jersey. Clearly people are willing to pay for the privilege.

    In Connecticut, an odd affair. Selectively loading my late grandparents' furniture, and in doing so moving objects that had been fixed points in my mental universe from my earliest memories. The heavy sofa bed with the vertigo-inducing pattern of its upholstery — my grandmother and their dog often occupying opposite ends — that occupied a permanent place along the wall of their living room, the chair by the window in which my grandfather routinely sat solving crossword puzzles and reading crime novels, the polished red wooden bed that they shared for decades: these things have now been uprooted, transplanted, and the soil that they once held firmly in place begins to shift, slide, erode. The present crumbles along with it into the surreal ghostliness of the past.

    Fully packed and loaded, our first overnight stop on the westward journey would be Ohio, as it turned out. More specifically, Newton Falls. We ate a cheeseburger and meatloaf at the Kountry Kupboard (I can't for the life of me explain why these cutely misspelled naming conventions are so common in the US) truck stop at the Center of the World, which serves as a nice metaphor for all of America's gimmicky grandiosity. The waitress called us "hon." What'll it be, hon? Anything else, hon? Here's hoping that particular casual custom never dies out entirely.

    Restaurant.jpg
    "Restaurant," Newton Falls, OH


    I-80 is a toll road in Ohio. And so it is — even in its dual life as I-90 — in Indiana and Illinois. Each one of our four axles mirrored dollar signs in the toll booth attendants' eyes. By that point, one-third of the way into the overall trek, we were averaging one tank of gas (at around sixty dollars a pop) every two hundred miles. The mounting costs offset the minor thrill of being on the open road. The cost of fuel for the entire trip would, incidentally, end up totaling more than $900.

    The second layover, having gained an hour in Indiana that in turn gave us an extra hour on the road, was in Wisconsin Dells, WI. We could hear the sounds of the highway — the steady hum of trucks barreling along — through the night. Around 5am or thereabouts the walls of our hotel room began to vibrate in time with a deep rumble. Must be an earthquake, I thought, still half-dreaming. It went on for several minutes. Then came the lonely honk of a train horn.

    Before heading out, we stopped for some famed Wisconsin cheddar in a hangar-like grocery store that took pride in underscoring its employee ownership. Then on into dry, hot, blustery Minnesota. The lasting impression it left was twofold: a flat, dull landscape and the smell of cow manure. I know from past experience that Minneapolis is an exciting, vibrant city, and that other areas of the state are quite pretty; but on this trip, the Land of 10,000 Lakes left me bored and tired. South Dakota was the same, except for the fact that the smell of cow manure was a bit more intense. At least the never-ending parade of billboards for tourist attractions kept us amused.

    Murdo_rainfall.jpg
    After the storm (color), Murdo, SD


    Speaking of tourist attractions: Wall, SD, home to Wall Drug, was our third stop. Wall is a quiet town whose ambient noise is the whoosh and groan of I-90. The owner of the Sunshine Inn was uncommonly polite and eager to help; in just ten hours, about eight of which we spent sleeping, he seemed to acquire the familiarity of an old friend. After our short post-breakfast walk down to Wall Drug for some watery 5-cent coffee, he sprang out of the motel office, as if he were afraid we'd leave without saying goodbye, and gave us an up-to-the-minute weather report for the mountain passes in Montana along I-90. They'd had heavy, impassable snowfall the previous day, a storm we'd experienced as heavy rainfall and jagged bolts of lightning on the horizon just outside of Murdo, where every restaurant was closed for the season except one with a dingy salad bar, watery soup, a weary waitress, and burnt buffalo burgers.

    Underway by 8am, which had by then established itself as our habitual departure time. Strong headwinds into Wyoming and Montana made for depressing driving; eight miles to the gallon would be a generous estimate. The surrounding landscape was the most scenic on our journey: dramatic mountain peaks and undulating hills with grazing livestock and lingering patches of snow. These are some of the reasons why the American west holds such a special allure for us. What better way to live than by spending every day in awe of such natural beauty?

    Wyoming_mnts.jpg
    I-90, Wyoming


    Later, another lackluster dinner in beautiful Bozeman, home to Montana University and a higher than average number of faded Bush/Cheney bumper stickers. Ah, right, I remembered, Sarah Palin was once rumored to be eyeing some land around here, and sure enough, she had a cameo on Butte's local evening news, where a clip was played of her saying empty, contradictory, incendiary things to people who share the qualities of her rhetoric. Shame that such a gorgeous state has to be marred by the absurdity of its prevailing political mindset.

    At last, the fifth and final day. Breathtaking mountain passes between the Sapphire Mountains and the Rockies led the way out of Montana and into Idaho. The panhandle, though only about 75 miles across, brought us through forested mountain passes before us dropping down along the beautiful Lake Coeur d'Alene and into the traffic on I-90 that cuts through Spokane. And this is where the real work begins: cleaning, painting, unpacking, installing, settling. Already the five days spent covering 2,600+ miles in a rental truck with a car trailer in tow have come to seem like a luxury.

    4 months on
  • Hopes May Die on the Grasmere
    IT HAD been nearly three years to the day since our last proper vacation. A time before children (actually, our eldest was with us at that time but still in utero). Before the chaos of a transatlantic move. Back when we could contentedly laze away entire weekends watching Doctor Who and didn't have to worry about sticking to a strict mealtime and sleep schedule. The point is, we needed a break.

    Children in the care of their grandparents, we headed off to the Lake District. Ambleside, to be exact, because it was close to Grasmere but wasn't as expensive. We'd booked two nights before our arrival — with ambient views of wall-to-wall sheep all the way from Yorkshire to Cumbria — at Elder Grove B&B, which, as it would turn out, would be our first choice for accommodation if we were to travel to the Lake District again. Free Wi-Fi, a comfy room, fantastic food, and friendly owners.

    On the afternoon of the day of our arrival, we took the short, muddy walk to Stock Ghyll Force, a picturesque waterfall once harnessed by the town's mills to pound fabric, on the east of Ambleside. There and back with leisurely pauses to take pictures and enjoy the scenery takes about an hour. It's an easy hike from the center of town, something to save for the days when inclement weather looms — more the rule than the exception in the Lake District, as our two-and-a-half days there would prove. When I say "easy," however, I don't mean with a stroller filled with food shopping, which is how two bare-midriffed would-be ramblerettes decided to make the ascent.

    For dinner we went to the Doi Intanon Thai restaurant, located in a renovated church at the foot of the road that leads to Stock Ghyll Force. Pricey and spicy. Even the items marked with a single chili (out of five) are enough to warrant a glass of milk on the side, and a single appetizer, two-special dinner with juice and aforementioned milk cost nearly £40. We'd been warned about the meager portions, but nothing could quite prepare us for the level of heat, especially after living in Germany, where "scharf" is what most would call "not bland." The place is popular nevertheless; there were no tables to be had by the time we left at 6pm or so.

    That evening we took advantage of Ambleside's surprisingly varied cinema offerings and saw Alice in Wonderland in 3D. As I tweeted (which is all the film really merits) after the show, the visuals were stunning but the action took place at seven emotional removes. As far as these newfangled 3D experiences go, Avatar, which likewise only merited a tweet, was a much more solid film.

    Day two — our first and only full day. We picked up the sack lunches we'd ordered from reception the night before and did a loop starting and ending at Rothay Park via Todd Crag (with views of Lake Windermere) on Loughrigg (pronounced luff-rig) Fell, Loughrigg Tarn, Loughrigg Terrace, and the Rydal Caves. It began to rain within 30 minutes of setting out and we were soaked before we'd even begun to cross the top of the fell. Fortunately, my K10D is weather resistant, else I'd have a non-functioning camera. Not that there was much to photograph. Visibility was virtually nil. While trying to peer over the outcroppings on Todd Crag to catch a glimpse of Windermere, I felt quite a bit like the figure in Der Wanderer über dem Nebelmeer, that iconic Romantic painting by Caspar David Friedrich. Only much, much wetter.

    Caspar_David_Friedrich_Wanderer.jpg


    Around the point where we were supposed to take the bridleway toward Loughrigg Tarn, we relied on instinct — always a bad idea — to lead us there. We ended up walking within 100 yards of where our wet adventure first began at the foot of Loughrigg Fell. It cost us about an hour of sloshy backtracking.

    Once on the right path, we swung around to Loughrigg Tarn and continued on the loop to the famed Loughrigg Terrace, which, given the right weather, offers excellent views of Grasmere and Rydal Water. We were not given the right weather. This sorry meteorological state began to change once we'd visited the off-limits caves above Rydal Water and were making our way back to Elder Grove. When we were finally back, stripped of our sodden clothes, and relishing the after-effects of a warm bath, the rain stopped, the clouds parted, and the sun came out.


    View Lake District Getaway in a larger map


    At this point, most people would shrug their shoulders, mumble something along the lines of c'est la vie, and continue their relaxation. Not us. Driven by a profound sense of injustice, we put on our only set of dry clothes and marched up to Todd Crag to get the views of Windermere that had been denied us earlier in the day. For the brief period that the weather held, we were rewarded with a wonderful vista.

    Windermere Lake HDR


    That evening we ate at Spice of Bengal, just around the corner from Elder Grove. It's a peculiar little joint, staffed by a brusque waitress with a Russian accent and a melancholic Indian waiter who seemed to desperately want a reason to smile. It wasn't half bad. The Butter Chicken was nothing special, but the Lamb Tikka Garlic Masala would be enough to draw me back for a return visit. Reasonable prices too.

    On our third and last day, we returned to Rydal Water and set out in the opposite direction of the previous day, moving clockwise along a crowded Loughrigg Terrace, around a virtually deserted Grasmere Lake, through the village of Grasmere (where we stocked up on Sarah Nelson's gingerbread and fudge), and past Dove Cottage, finally returning via our initial route on the banks of Rydal Water.

    Rydal Lake HDR Grasmere Lake HDR


    Our hopes of having any sun at all or decent views and dry hiking died on the Grasmere. As if the weather were on a 24-hour loop, we were hit with rain around 10:30am, not long after starting, and that rainfall was fairly constant until the point when we were ready to retire for the day in late afternoon. We attempted to dry out over fish and chips at the Walnut Fish Bar, which had been given a lukewarm recommendation as "pretty much bog standard fish and chips" by the barista at Esquires Coffee House across the way. We'd drop in there afterwards for coffee and a quick e-mail check courtesy of their free Wi-Fi. Both the coffee and the chai tea were excellent. Then a brief stop for the requisite photos of Bridge House. Soon we were on our way back along the A65 to the rural outskirts of Leeds.

    To those contemplating a trip to the Lake District, a stay in Ambleside — and more specifically at Elder Grove — comes with my hearty recommendation. Grasmere would certainly make for a nice, quiet retreat, but it appears to lack even the subdued nightlife of its neighbor, where, as I mentioned, there's at least a full fare of cinema listings and a variety of restaurants for the post-hike evenings. The town also has quite a few open Wi-Fi hotspots throughout, which come in handy for those like myself who lack mobile data plans and are at any rate speedier. In addition to offering cheaper accommodation than Grasmere, it's also more centrally located in terms of walkability to the popular lakes. Ambleside seems to me to strike the perfect balance between the bucolic and the bustling, and that ought to mean that both families and couples can rely on it to provide whatever it is they're after.

    The weather? Well, that's certainly much more fickle.

    Some additional relevant (and potentially useful) links:



    5 months on
  • Presenting the Spokane Books Blog
    AS IF I don't already have enough to do (and a hard enough time getting it done), I've just started the Spokane Books Blog, which is everything and nothing more than the name suggests. And because no books-themed blog would be complete without a complementary Twitter and a Shelfari account, I've got those too.

    Its primary purpose is to track what literature is coming out of the Inland Empire, who's writing it, and what residents of Spokane are reading. Besides the backs of cereal boxes, I mean. Although I'm quite satisfied so far with the blog layout, I've already failed at properly covering this year's Get Lit! festival, which will be taking place over the week (April 14 to 21) that we roll into Spokane and have to attempt to unpack and settle in; the best I can do is follow it from afar and encourage others to participate in what looks to be a pretty exciting festival.

    So visit the Spokane Books Blog. Follow it on Twitter. And check out its Shelfari page. The more active the scene, the more I'll have to blog about.

    5 months on
  • June
    LAST night as I drifted off to sleep the image of a girl I once knew from my early childhood in Glen Gardner, NJ (we moved away when I was eight) suddenly and inexplicably appeared in my thoughts. Her name was June and she lived on a hilly road not too far from the Spruce Run Lutheran Church. She had sandy brown hair and freckles and a scratchy voice, and if I recall correctly (which I so often do not) a small scar on her lower lip. We may have played on a soccer team together, but I can't be sure; it's in trying to give it context that the particular memory I have begins to disintegrate like an antique photograph.

    If you're out there, hi, June. I remember your eight-year-old self.

    5 months on
  • Limbo
    THE Ides of March of this year was a day we had long been wary of. It began, as I suppose all moving days do, early, and with little sense of tranquility. The air mattress we'd been using for a bed still needed to be collapsed and folded. The food we intended to eat was still lying out on the counter amid stacks of plates and saucers. The children, despite our best attempts at preparation, had no idea what was about to take place, and couldn't quite understand why this day wasn't as leisurely as any other. Partially packed boxes that still awaited the last perfectly shaped object(s) before being satisfyingly shut and sealed were scattered throughout the apartment.

    The movers would arrive at 9am, and they would waste no time in dismantling, wrapping, taping, labeling, stacking, and ultimately packing every last one of our worldly possessions in a 20' shipping container parked on a flatbed just outside the building.

    That night, after the frenzied rush to vacuum and mop the place (who could have known what monstrous, fanged dust bunnies the vanishing furniture would reveal?) before the vacuum was given away and the flat was inspected, we slept at a friend's house. The girls, exhausted, dropped off almost instantly. We ordered an Indian take-out that we would be too tired to finish — we'd be carrying around the uneaten pakoras like dazed vagrants until reaching airport security, who characteristically failed to find any humor in it, the following day — and gave ourselves to sleep, albeit hesitantly, knowing that only the 4:30am alarm could get us to the airport in time.

    Since then we've been a diaspora of four, living in a sort of stateless limbo that is both a liberation and a bother. Three suitcases, no rent, no utilities, no meals to cook, helping hands with the children; and yet not at home, everything pending, with no proper address ("Well, you see," I explained to the confused concierge who wanted to make sure all the credit card details were on the up-and-up, "it's probably officially still billed to a Hamburg address, but we've just left there and haven't yet arrived at the US address, which is technically our current address, and so..."), and eager to begin that warmly gratifying process of settling into the new home and claiming it as our own.

    This Zwischenzeit was unavoidable. Not that its mild inconveniences make it something worth avoiding; but still. The shipping container will be in transit for more than a month, making its way from Bremerhaven to Seattle via the Panama Canal. There were friends and family to see. Truth be told, with three years since our last vacation, my wife and I needed the opportunity for a break (which, starting tomorrow, we will get). And in some respects it's only an extension of our time in Germany, where more often than not we were regarded as misfits who could never quite get to grips with the German mentality, with all its inherent Schadenfreude and superciliousness and worship of certificates and Korrekt-ness, and therefore couldn't quite call the place home, even if we had desperately wanted to. Perhaps we've been in limbo longer than I realize, and I was only fooled into thinking otherwise by the lull of routine and the regular visits from the postman.

    5 months on
  • A Lone Tech Writer's Take on CeBIT 2010
    "CeBIT is the world's largest trade fair showcasing digital IT and telecommunications solutions for home and work environments." That's what it says on the trade fair's website, and publicity bumpf[1] never, ever lies. Nor does it fib, bluff, prevaricate, or quibble.

    Much like any trade fair from architecture to zookeeping, CeBIT has booths — some big, some small — that are manned by smiling people who are eager to tell you about their product lineup and pass on some of their brochures. Usually there's a crowd gathered around the cool, hip startup that's got enough fresh capital to give away free USB flash drives and have the place decked out in pulsing neon; nearby, across the aisle, the folks flogging a niche product like LOLcat-themed server racks watch forlornly from their quiet booths.

    CeBIT 2010


    I hadn't been to CeBIT in recent years. Between 2002 and 2007, I was living too far away in England and Germany for the trip to be worthwhile. In 2008 I just plain forgot it was taking place. And in 2009, my second daughter was born on the day I'd planned to go. But all the way back in 2001, back when Super Audio CDs were the Next Big Thing (Sony totally called that one, just like they did with MiniDisc), I did make it to CeBIT as part of an agency-sponsored trip, and I came home with a nice goody bag full of brochures, keychains, and fridge magnets.

    This year my aim was swag of a different variety, namely, business cards. Doing copy- and technical writing and translation for larger companies has been and continues to be rewarding, and their names certainly add to the prestige of a portfolio, but I was hoping to find smaller companies to work with, folks for whom I'm not just a name in a Rolodex passed on from the previous marketing director. Being taken for granted is, I think, one of the most disheartening things for creative types. So I went in search of those aforementioned niche hardware manufacturers and emerging companies who weren't already equipped with a full English-language marketing staff.

    CeBIT 2010. Foosball, anyone?


    Reactions varied. Some exhibitors met my suggestions with a raised eyebrow, as if they couldn't imagine how their sign that read, "Fast IT solution you need now!" could be improved. But some — particularly those who were keen to break the American, Australian, or UK markets — were really open to the idea and seemed quite eager to have their English materials either written or proofed by a native speaker. To someone for whom gadgets are as much a hobby as they are a profession, the prospect of being able to see and write about what's happening at the forefront of IT (because the biggest names don't always necessarily have the cutting-edge technology) and in specialized solutions like surveillance was an exciting one.

    It's far too early to gauge the success of my trip to Hannover, because most of the people with whom I spoke are still at CeBIT manning their exhibition booths. Their friendliness toward the pitch of a freelance tech writer could be the same friendliness they showed everyone who paused for a few seconds to learn about their company. But, if nothing else, it was an opportunity to chat with people that I wouldn't have had reason to chat with otherwise, and to get a cursory overview of some of the things that will be trending in the world of home and business tech in the coming year. And to think I never even made it beyond Halls 12 and 13.

    ----------

  • OS X's spellcheck is telling me that "bumpf" isn't a word. I wholeheartedly disagree.

6 months on
  • Some After-the-Fact Thoughts on Suite Française
    PERHAPS it was a false memory, but I was certain that I'd once read a review of Irène Némirovsky's Suite Française that laid out a convincing and damning argument for the alleged strain of anti-semitism that ran through her writing. But the magazine in which I thought I'd read it — Harper's — held only one review of the book in its flawed but mostly searchable online archives, and the author who I vaguely recalled as having written it — female, I think; Jennifer something? Jessica? — was nowhere near the byline.[1]

    And so I recently approached the book, many years after its appearance as something of a literary sensation, prejudiced by this influential phantom review. Before my eyes had even scanned the first paragraph, I'd long developed a dislike of the author, who, I was convinced, was nothing more than a toadying, resentful, opportunistic turncoat. I was prepared to come across loathsome Jewish characters of hers that perpetuated the nasty stereotype on which the Nazi propagandists capitalized during their feverish attempts to exterminate the one race of people that has done more than any other to raise humanity out of its crude barbarism.

    But over the course of the novel's 350 pages I found nothing that I was expecting to find. In fact, in the opening movement, "Storm in June," all the characters are equally base and contemptible in their author's eyes, and none of them, so far as I could tell, was explicitly Jewish. The second movement, "Dolce," views, as the name suggests, its principal characters through a somewhat softer and more forgiving lens; and again, none was painted with the broad brush of the Jewish stereotype. While one could argue that it is the conspicuous absence of Jews and their treatment during German occupation that makes Suite Française suspect, the only real piece of evidence to support these half-recalled accusations of anti-semitism were relegated to the appendix, in which Némirovsky's doomed husband, Michael Epstein, in a desperate and ultimately futile bid to free her from the concentration camp, writes to the German ambassador Otto Abetz:

    In none of her books (which moreover have not been banned by the occupying authorities) will you find a single word against Germany and, even though my wife is of Jewish descent, she does not speak of the Jews with any affection whatsoever in her works. [... I]t seems to me both unjust and illogical that the Germans should imprison a woman who, despite being of Jewish descent, has no sympathy whatsoever — all her books prove this — either for Judaism or the Bolshevik regime.


    Under similar circumstances, I have to say that I would be just as quick to dissociate myself from my Presbyterian upbringing and Italian ancestry, both of which I regard as incidental details to my existence and neither of which am I particularly attached to as an essential piece of my identity. Few, I should hope, would label me anti-Presbyterian or anti-Italian on account of it. Why, then, when such a thing is written under duress on behalf of a non-practicing Jew (and later convert to Catholicism), would the action open itself to the charge of the subject's own anti-semitism? Or if I were to read Némirovsky's David Golder, purported to be rife with Shylock characters, would it all suddenly make sense? And would, say, an American author's use of negative caricatures of his compatriots in his writing therefore automatically make him anti-American?

    The author's purported politics and antipathies aside, from a purely technical standpoint, Suite Française as a novel is rather good, though not much more than that. Némirovsky is a deft hand at the sneering aside that cuts through her characters' grandiosity and self-deception, but it has the unwelcome effect of making them so many pins to be knocked down. Although the author's merciless gaze throughout "Storm" was refreshingly honest in many respects, the complexities and ambivalence of "Dolce" made for better reading and more credible characters. In this regard, Suite Française was a victim of its hype as well as its controversy; very few novels could have measured up to the giddy welcome like the one it received upon its first English-language publication in 2004.

    ----------

  • An after-the-fact footnote to these after-the-fact thoughts: The article, I just discovered, was "Scandale Française" by Ruth Franklin in The New Republic. The article is no longer available on the magazine's website, though there are still traces of the feathers it ruffled.

  • 6 months on
  • Facebook Login (Hey, Google, Over Here!)
    HAVE a look at this article on Facebook's evolving and increasingly ubiquitous OpenID-type login and then take a gander at the (fifteen pages of!) comments. What amazes me is how clearly the conversation is divided into two tiers — although I'm not entirely sure how many misspelled, CAPS LOCK-ridden pleas for access in the bottom one are legit or are simply rabble-rousing.

    John Gruber has one Apple-related take on it. The other aspect to consider in this unintentional social experiment is how much more freely the angry, half-literate users will be able to offer themselves up for identity fraud or move through the lock-and-key barriers of the Web when Facebook's OpenID login becomes more ubiquitous. I'd like to think that the easier access will give them scores of opportunities for self-edification, but the cynic in me thinks that they'll just find it easier to leave confused, irate comments on articles they haven't bothered to read and understand.

    6 months on
  • "Spenden" heißt nicht "stehlen"
    IN PREPARATION for the transatlantic move, we put all our 240V electrical goods — Christmas lights, universal power supplies, plug adapters, power strips, surge protectors, telephone gear — in a box in front of our flat with a sign saying that it was there for the taking but that donations were welcome.

    The shifty bastard on the fourth floor — the one who comes back late at night boorishly drunk with friends and wakes up our kids, the one who regularly watches movies at such a volume that we can hear the dialogue word for word two floors below — cherry-picked the best items and then scurried back to his flat ... though not without returning immediately thereafter to grab a second haul. Probably about fifty euros' worth of stuff when it was new.

    He didn't leave a cent.

    I'm growing more and more convinced that Germany doesn't want us to miss it. At all. Instead of Auf Wiedersehen, it would prefer our parting words to be, Gott sei dank, dass wir das los sind!

    6 months on
  • Cyberchondria
    I WAS catching up on old podcasts when I came across the November 13, 2009 episode of On the Mediathis segment in particular (audio below) — in which a condition dubbed "cyberchondria" was discussed.


    This has some personal significance because it touches on my own experience with being diagnosed with sarcoidosis last October. Confronted with a disease I'd never heard of (imagine me here collapsed to my knees, shaking my fists at the sky and railing, Charlton Heston-like in my anguish, "Where is my awareness month? Where? Where?!"),[1] I naturally turned to Google to help me find more information. I came across forums and blogs where people discussed sarcoidosis, and more often than not, they related agonizing, emotional, hopeless stories of their lives with the disease. After an hour or two of reading harrowing personal tales in this vein, I became despondent, convinced that my organs were already in the early stages of a grim succession of inevitable collapse.

    Seven months after the first symptoms appeared, I'm still alive. My lungs have not given out. I have not gone blind. As I write this, I still have tightness in my chest — it comes and goes, usually along with fatigue and swelling of lymph nodes — but there are no other significant symptoms. The optometrist has said that the granulomas have not spread to my eyes. The radiologist's X-rays show no increased inflammation in my lungs. The pulmonologist has wired me up, stuffed breathing tubes into my mouth, and put me through endurance tests on an exercycle, only to find that everything is functioning as well as or better than it ought to. My general feeling after each one of these appointments is one of mild relief.

    That experience differs slightly from rigidly defined cyberchondria, which often begins with self-diagnosis. A pain in the side or, in the case of the reporter interviewed for OtM, a twitch in the eyelid. I had actually been to the doctor that very morning on the day my Internet trawling began, and that doctor had delivered his diagnosis in full confidence. So at that time I wasn't looking to match my perceived symptoms to the appropriate disease, a blind man choosing from a police lineup; I was imagining the already palpable symptoms of a valid disease in their most advanced stages, a morbid exercise in unbridled imagination. However, the feeling of despair that persists despite the accelerated heart rate is, I'd guess, similar to the one that cyberchondriacs feel when they connect the stiffness in their finger to the onset of gangrene.

    This is the point where I might be expected to lament that I too was cyberchondria's dupe, to rage at the misleading preponderance of gloomy narratives on those forums, and to curse myself for allowing my vulnerability to cloud my skepticism. Or I might launch into an argument that cyberchondria is yet another media myth, dreamed up by some trend-spotting journalists to shame the gullible, and that nothing but good can come of the surfeit of health information that countless blogs and support forums make available (more often than not via Google) to the layman.

    But it's neither of those. And both of them.

    I'm grateful to those across the Internet who have recounted their sad experiences with sarcoidosis, because, though dire, they convey the varied and unmitigated potential of this disease. No sugar coating, no punches pulled. From them I know what kind of awful developments the future might hold; though it's mild now, there's no guarantee that sarcoidosis won't take those more menacing forms in my own body later on. And far from resenting OtM for suggesting that we're too irresponsible to handle this egalitarian deluge of unfiltered information, I'm glad to have heard that broadcast, however delayed, because it kept some of those runaway fears I had at the outset in check. Often we need to be shown the extremes in order to find our way to the balance at the center.

    ----------

  • Apparently there is a National Sarcoidosis Awareness Day, maybe in October, and there might even be a whole month devoted to it, which might possibly be in April, but no one seems to know for sure.

  • 6 months on
  • The Tragically Hip
    "THAT'S the sort of thing that happens when a Guardian film writer, literary web editor and arts writer get together after hours over a bottle of red wine."

    Oh, Dame Higgins, spare us your sophistication.

    Not to mention that every suggestion is rubbish.

    7 months on
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